Use this url to cite publication: https://hdl.handle.net/20.500.12512/116269
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Clinical case coordinator: Improving health care service for rare disease pediatric patients / Ruta Navardauskaite, Daiva Borkiene, Kristina Ilgaudaite, Egle Ramanauskiene, Lina Jankauskaite
Type of publication
Tezės kitame recenzuojamame leidinyje / Theses in other peer-reviewed publication (T1e)
Author(s)
Title
Clinical case coordinator: Improving health care service for rare disease pediatric patients / Ruta Navardauskaite, Daiva Borkiene, Kristina Ilgaudaite, Egle Ramanauskiene, Lina Jankauskaite
Publisher (trusted)
Frontiers Media SA |
Date Issued
Date Issued |
---|
2022-10-07 |
Extent
p. 579-581 : pav.
Is part of
Frontiers Event Abstracts : abstrcat volume : the 9th Congress of the European Academy of Paediatric Societies - EAPS 2022 congress. A Joint Scientific and Educational Event of EAP, ESPNIC and ESPR : October 7-11, 2022, Barcelona & Online : Frontiers abstract book / The European Academy of Paediatrics (EAP). The European Society for Paediatric Research (ESPR). The European Society of Paediatric and Neonatal Intensive Care (ESPNIC). Lausanne : Frontiers Media SA, 2022. ISBN 9782889710249.
Version
Originalus / Original
Description
no. LO059 / #1154
EAP Session 10: The integrated health and social approach in children with chronic diseases: Is complex care of children with chronic diseases possible in the community healthcare?
ISBN: 978-2-88971-024-9
Field of Science
Abstract
Introduction. Rare diseases are frequently chronic affecting multiple organ systems. Those patients require periodic and continuous medical evaluation. Due to the high workload of the health care system, accessibility is difficult following negative consequences for health outcomes related to delayed investigation or treatment. Thus, our University Hospital began implementation of clinical case coordinator (CC) for the patients with rare diseases. Methods CC service was implemented in December 2021 with main function of patient referral to certain rare disease expert. Quality questionnaire was created and provided for patients to evaluate previous experience and current situation of referral. Data were analyzed December 2021-March 2022. We collected: total number of consultations needed (different medical experts), registration method, region of origin, waiting duration in days until consultation, and between consultation of different experts. We evaluated patients' service satisfaction level. Statistics were calculated with SPSS 27.0; p3–10% of patients. Consultations of more than 1 specialist were fulfilled within 1-2d. Customers' satisfaction of CC service was evaluated as excellent–85% (of all respondents), very good–10%, good–5%. Conclusions Our data show the important role of CC which led to a significant decrease in waiting duration until referral to a specialist. Most of the patients did find the CC role excellent.
Type of document
type::text::conference output::conference proceedings::conference paper
ISBN (of the container)
9782889710249
Other Identifier(s)
(LSMU ALMA)991683587207106
Coverage Spatial
Ispanija / Spain (ES)
Language
Anglų / English (en)
Affiliation(s)