European Cancer Information Portal

Summary:

The European Cancer Patient Digital Centre (ECPDC) Information Portal (EU-CIP) addresses the information needs of cancer patients, survivors, relatives and caregivers. EU-CIP aims to create a patient-centric cancer information portal that improves health literacy, empowers patients, and reduces inequalities in access to cancer care information across Europe. The EU-CIP primary goal is to improve quality of life and enhance cancer patient care by improving access to general and personalized knowledge, delivering comprehensive information on cancer prevention, early detection, diagnosis and treatment options including risks, side effects and late effects as well as information on rehabilitation and management of recurrence and palliative care. EU-CIP will prioritise high-incidence cancers, those with poor prognosis and pediatric cancers. A Common Library of Contents available to all Member States will be created and EU-CIP nodes will be deployed in 10 Member States. The Library of Contents will use information from evidence-based sources such as the Knowledge Centre on Cancer and the European Cancer Information Service, existing Cancer Information Portals, and European guidelines. A governance framework for scalable content creation and review processes supported by AI tooling will be established. The consortium partners, including several patient organisations, will ensure that the patients’ view is reflected in the content review and technology and usability aspects. The EU-CIP Central and local nodes will be built in a modular fashion to allow integration with existing electronic health infrastructures. To align with the EU Cancer Mission goal to improve lives through prevention, EU-CIP will raise awareness about the Mission and Europe’s Beating Cancer Plan. Alignment with the Mission’s overall plans will be realized through collaboration with the EU funded projects of the related 01-01/01-02 calls.

The main objective of the JADE Health Joint Action (JA) is to improve and foster health in the EU Member States by reducing the burden of Dementia and other Neurological Disorder and related diseases, both at societal personal level, through improving prevention and early detection of the illnesses(diseases) and improve education and insight into and understanding of the disease for relatives, care professionals and other stakeholders. This Joint Action will be implemented by 18 countries of EU involving best practices in 38 pilots in the countries participating.

PROJECT PARTNERS

• Charite – Universitaetsmedizin Berlin (CHA)
• Ait Austrian Institute Of Technology GMBH (AIT)
• Biobanks And Biomolecular Resources Research Infrastructure Consortium (BBMRI-ERIC)
• Gesundheit Osterreich GMBH (GOEG)
• Comunicare Solutions (ComCare)
• Digestive Cancers Europe Dice (DiCE)
• European Cancer Organisation (ECO)
• Ogkologiko Kentro Trapezas Kyprou (BOCOC)
• Deutsches Krebsforschungszentrum Heidelberg (DKFZ)
• Identity Valley Research gGmbH (IDV)
• Steinbeis Innovation Ggmbh (SIG)
• Universitatsklinikum Heidelberg (UKHD)
• Barcelona Supercomputing Center Centro Nacional De Supercomputacion (BSC)
• Futuro Perfecto Innovacion Sl (FPI)
• Instituto Aragones De Ciencias De La Salud (IACS),
• Fundacio Privada Institut D’investigacio Oncologica De Vallhebron (VHIO)
• Magyar Gyermekonkologiai Halozat –Magyar Gyermekonkologusok Es Gyermekhematologusok Tarsasaga (HUPON)
• Department Of Health (DoHIE)
• Center For Ethics In Science And Science Journalism – Centro Per L’etica Nella Scienza E Nel Giornalismo Scientifico (CESJ)
• Lietuvos Sveikatos Mokslu Universitetas (LSMU)
• Pagalbos Onkologiniams Ligoniams Asociacija (POLA)
• Valstybes Duomenu Agentura (LSDA)
• Information Technology For Translational Medicine (ITTM)
• Luxembourg Institute Of Health (LIH)
• Institut National Du Cancer (INC)
• Cancer Research and Innovation Hub Malta CRIHM Foundation (CRIHM)
• Stichting Health-Ri (HRI)
• Oslo Universitetssykehus Hf (OUS)
• Evidence Prime spolka z o.o. (EVP)
• Sociedade Portuguesa De Literacia Em Saude (SPLS)
• Fundatia Youth Cancer Europe (YCE)
• Institutul Oncologic Prof Dr Ion Chiricuta Cluj-Napoca (IOCN)
• Asociatia Centrul Pentru Inovatie In Medicina (INOMED)
• Region Skane (NMC)
• Sveriges Kommuner Och Regioner (cRCCS)
• Onkoloski Institut Ljubljana (OIL)
• Drustvo Onkoloskih Bolnikov Slovenije Association Of Oncology Patients Of Slovenia (CPAS)
• European Molecular Biology Laboratory (ELIXIR)