Holistic Oncological Palliative care 4 Europe’s Kids

Summary: Each year, approximately 14,000 children and adolescents in Europe are diagnosed with cancer. Although survival rates have improved, around 20% of paediatric cancer patients cannot be cured. Paediatric palliative care (PPC) aims to prevent and relieve suffering of children with life-threatening or life-limiting conditions and to support their families.

HOPE4Kids brings together partners across EU Member States and associated countries to strengthen and harmonise paediatric palliative care in Europe. The Joint Action includes landscape analysis, guideline development, pilot activities, education and training, and sustainability measures, focusing on six cross-cutting themes: symptom treatment, advance care planning, shared decision-making, psychosocial care, pre-loss and bereavement care, and models of care.

The expected outcome of the project:

• Improved quality and availability of paediatric palliative care in Europe.
• Harmonised guidelines and care models across Member States.
• Strengthened education and training in PPC. Sustainable cross-country cooperation in paediatric oncology palliative care.

This project is funded by the European Union under the EU4Health Programme (Grant Agreement No 101233078). Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HADEA. Neither the European Union nor the granting authority can be held responsible for them.

PROJECT PARTNERS

• Sciensano (Sciensano), Belgium
• Klinicki centar univerziteta u Sarajevu javna ustanova u drzavnoj svojini sa po (KCUS), Bosnia and Herzegovina
• Universitetska mnogoprofilna bolnitsa za aktivno lechenie Tsaritsa Yoanna-ISUL (KDKHO-ISUL), Bulgaria
• Klinika za djecje bolesti Zagreb (KDBZ), Croatia
• Region Hovedstaden (REGIONH), Denmark
• Tartu Ulikool (UTARTU), Estonia
• Ypourgeio Ygeias (HMH), Greece
• Orszagos Korhazi Foigazgatosag (NDGH/OKFO), Hungary
• Landspitali University Hospital (LANDSPITALI), Iceland
• Regione Emilia Romagna (RER), Italy
• Universita degli Studi di Padova (UNIPDSDB), Italy
• Istituto di Ricovero e Cura a Carattere Scientifico Burlo Garofolo (IBG), Italy
• Ospedale Pediatrico Bambino Gesu (OPBG), Italy
• Bernu Kliniska Universitates Slimnica Valsts SIA (CCUH), Latvia
• Lietuvos Respublikos Sveikatos Apsaugos Ministerija (SAM LT), Lithuania
• Ministeru Ghas-Sahha u l-Anzjanita Attiva (MHA), Malta
• Institutia Medico-Sanitara Publica Institutul Oncologic (IO), Moldova
• Stichting Kenniscentrum Kinderpalliatieve Zorg (KKZ), Netherlands
• Oslo Universitetssykehus HF (OUS), Norway
• Uniwersytet Medyczny w Lublinie (MUL), Poland
• Ministerio da Saude (DGS), Portugal
• Ministerul Sanatatii (MS), Romania
• Univerzitetni Klinicni Center Ljubljana (UKCL), Slovenia
• Fundacion Instituto de Investigacion Marques de Valdecilla (IDIVAL), Spain
• Servicio Murciano de Salud (SMS), Spain
• Servicio Andaluz de Salud (SAS), Spain
• Fundacion para la Formacion e Investigacion de los Profesionales de la Salud de Extremadura FUNDESALUD (FUNDESALUD), Spain
• Servicio Aragones de Salud (SALUD), Spain
• Departament de Salut – Generalitat de Catalunya (DSCAT), Spain
• Socialstyrelsen (SOCIALSTYRELSEN), Sweden
• Okhmatdyt National Childrens Specialized Hospital Ministry of Health of Ukraine (UCSH “OHMATDIT”), Ukraine
• Sihtasutus Tallinna Lastehaigla (TCH), Estonia
• Sihtasutus Tartu Ulikooli Kliinikum (TUK), Estonia